Pursuant to section 10(d) of the Federal Advisory Committee Act, as
amended, notice is hereby given of a meeting of the Muscular Dystrophy
Coordinating Committee (MDCC).
The meeting will be open to the public and accessible by
teleconference. Participation is limited to space available.
Individuals who plan to participate and need special assistance, such
as reasonable accommodations, should notify the Contact Person listed
below in advance of the meeting.
Name of Committee: Muscular Dystrophy Coordinating Committee.
Type of meeting: Open Meeting.
Date: September 17, 2018.
Time: 2:00 p.m. to 5:00 p.m. Eastern Time--Approximate end
Agenda: The purpose of this meeting is to bring together
committee members, representing government agencies, patient
advocacy groups, other voluntary health organizations, and patients
and their families to update one another on progress relevant to the
Action Plan for the Muscular Dystrophies and to coordinate
activities and discuss gaps and opportunities leading to better
understanding of the muscular dystrophies, advances in treatments,
and improvements in patients' and their families' lives. Prior to
the meeting, an agenda will be posted to the MDCC website: https://mdcc.nih.gov/.
Registration: To register, please contact Emily Carifi:
Join WebEx Meeting: https://nih.webex.com/nih/j.php?MTID=m1c5fd34513186c7c87ebeeee5af47f05;
Meeting number (access code): 628 888 923, Meeting password:
Join by Phone: 1-650-479-3208 Call-in toll number (US/Canada)
Global call-in numbers: https://nih.webex.com/nih/globalcallin.php?serviceType=MC&ED=701170342&tollFree=0.
Place: National Institutes of Health, Neuroscience Center, 6001
Executive Boulevard, Rockville, MD 20852, (Telephone Conference
Contact Person: Glen H. Nuckolls, Ph.D., Executive Secretary,
Muscular Dystrophy Coordinating Committee, National Institute of
Neurological Disorders and Stroke, NIH, 6001 Executive Boulevard,
NSC 2203, Bethesda, MD 20892, (301) 496-5745, firstname.lastname@example.org.
Any member of the public interested in presenting oral comments
to the committee may notify the Contact Person listed on this notice
at least 10 days in advance of the meeting. Interested individuals
and representatives of organizations may submit a letter of intent,
a brief description of the organization represented, and a short
description of the oral presentation. Only one representative of an
organization may be allowed to present oral comments and if accepted
by the committee, presentations may be limited to five minutes. Both
printed and electronic copies are requested for the record. In
addition, any interested person may file written comments with the
committee by forwarding their statement to the Contact Person listed
on this notice. The statement should include the name, address,
telephone number and when applicable, the business or professional
affiliation of the interested person.
More information can be found on the Muscular Dystrophy
Coordinating Committee home page: https://mdcc.nih.gov/.